Thursday, June 04, 2009

Thankful

Has been tough deciding how to restart this blog.  As I sit here looking out my window, pretty much like I have for the last 9 years, I reflect a lot on what has happened and what might happen.  Spending most of my time alone in this house has given me a lot of time to dream, cry and pray.  That is when, I am not sleeping or tamping down the pain.  That's pretty much what living with an invisible illness is; for me that is fibromyalgia, chronic fatigue and spinal stenosis. It's actually not that simplistic, but in a nutshell will do for now.  Doesn't bother me to be by myself as I feel there is a big difference between alone and lonely. During this time I have discovered what is truly important and learned to appreciate things with clarity not known before.  Of course this happens when I am not hit by a rolling fog storm.

The past two days have been spent sleeping on and off around the clock. Time gone - GONE, never to be regained. Morgan has been spending time with her Aunt Deb, so one less worry knowing she's in safe keeping. I was asleep before he got home at 3:30 and woke about 7:30 p.m. It was dark and so quiet in the house, something about dark equals quieter. Making my way down the hallway I am thinking great, now I have missed everything.  Closer to the kitchen, I begin to see a faint light in the den, but it is still so quiet. My heart sinks a little thinking I am by myself.  I open the sliding glass door and peek around the corner; there he is sitting in the recliner. First thing he says, "are you okay honey"?

And my heart feels this rush of calm. I don't know why, because he's always there or he lets me know where he is.  Bobby has been my rock. We have been married 13 years and he has really gotten the short end of the stick. Our families probably suffer more than we do; they give up so much too.  It hasn't always been this easy for us; maybe more about that later. But the thing with Bobby is he made me really laugh when we first met. No one else really did that before and I am such a stick in the mud.  So today he calls and tells me he will miss his dentist appointment this evening. Asks me to get the card off the refrigerator and tell him their phone number.  I look at the card and say, 4:30.  He laughs and laughs, my heart melts. Okay blondie, the phone number.

I am a very lucky girl.

Wednesday, May 27, 2009

Found My Blog

Hello blog. I had totally forgotten about you. I have come a long way since 2005.  Thank you Lord. I am now on twitter and found a lot of friends that are awesome.
So much has happened that I do not know where to begin. I will think about it for awhile.
Welcome back.

Sunday, July 31, 2005

Worlds Healthiest Foods

Food Advisor

This site has been useful. I also find that the simpler foods I eat does help.

Do Your Allergies a Favor: Do NOT Make Your Bed

Do Your Allergies a Favor: Do NOT Make Your Bed

Not that I ever was the best housekeeper in the world and since becoming ill my entire house is now caving in around me, this did make me feel only a tiny, tiny bit better.

Friday, July 29, 2005

Drug Used To Treat Parkinson's Disease May Be Beneficial In Treating Fibromyalgia

Drug Used To Treat Parkinson's Disease May Be Beneficial In Treating Fibromyalgia

This is next on my list for discussion with my doctor. I have tried so many different medications, vitamins, herbs, therapies that I, at times, become so frustrated and give up. But after awhile I make a comeback and start digging around for what I think might be worth a try. I am forever looking for that magic cure or combination of things that will work to get this pain out of my body.

Thursday, April 21, 2005

The Fruit Pages - Education, Health Diet, Fruits Information

The Fruit Pages - Education, Health Diet, Fruits Information

One of the things that I have done is to alter my diet. I can tell when some things really hurt me more. For example colas contain phosphoric acid and it does seem that I am more sore to the touch after drinking. Pizza - I always wake up the next morning with my face swollen.

Thursday, February 03, 2005

Fun Blogs

Okay, enough medical time for a switch to:

gigglechick.com


Betsy Devine: Funny Ha-Ha or Funny Peculiar? : Learn to write funny

Center for Complex Infectious Diseases

More stealth information:

Center for Complex Infectious Diseases

WHAT IS HHV6 - And FMS/CFS - Stealth Virus

Information on the virus follows at this site:

No Right Click

When I met with Dr. Strauss, he said he had new medication for me to try - Valtrex. I stated that was good since I had written some medications that I wanted to try and one was valcolyvir. Turns out they are one and the same. We were definitely on the same wavelength that day - too ironic - laugh for the day.

RX-List

Fun's over. Check prescriptions at this site:

Zovirax Online, Description, Chemistry, Ingredients - Acyclovir - RxList Monographs