Has been tough deciding how to restart this blog. As I sit here looking out my window, pretty much like I have for the last 9 years, I reflect a lot on what has happened and what might happen. Spending most of my time alone in this house has given me a lot of time to dream, cry and pray. That is when, I am not sleeping or tamping down the pain. That's pretty much what living with an invisible illness is; for me that is fibromyalgia, chronic fatigue and spinal stenosis. It's actually not that simplistic, but in a nutshell will do for now. Doesn't bother me to be by myself as I feel there is a big difference between alone and lonely. During this time I have discovered what is truly important and learned to appreciate things with clarity not known before. Of course this happens when I am not hit by a rolling fog storm.
The past two days have been spent sleeping on and off around the clock. Time gone - GONE, never to be regained. Morgan has been spending time with her Aunt Deb, so one less worry knowing she's in safe keeping. I was asleep before he got home at 3:30 and woke about 7:30 p.m. It was dark and so quiet in the house, something about dark equals quieter. Making my way down the hallway I am thinking great, now I have missed everything. Closer to the kitchen, I begin to see a faint light in the den, but it is still so quiet. My heart sinks a little thinking I am by myself. I open the sliding glass door and peek around the corner; there he is sitting in the recliner. First thing he says, "are you okay honey"?
And my heart feels this rush of calm. I don't know why, because he's always there or he lets me know where he is. Bobby has been my rock. We have been married 13 years and he has really gotten the short end of the stick. Our families probably suffer more than we do; they give up so much too. It hasn't always been this easy for us; maybe more about that later. But the thing with Bobby is he made me really laugh when we first met. No one else really did that before and I am such a stick in the mud. So today he calls and tells me he will miss his dentist appointment this evening. Asks me to get the card off the refrigerator and tell him their phone number. I look at the card and say, 4:30. He laughs and laughs, my heart melts. Okay blondie, the phone number.
I am a very lucky girl.

8 comments:
What a blessing to have great support. I'm so thankful to have a DH who makes me laugh and has patience through this torment. Gentle hugs to you. I can relate to many things you've said. I'm enjoying your tweets and look fwd. to more blog entries.
The Queen (aka mrshelmetdude on Twitter)
Thank you for sharing. I can certainly empathize with your story. It sounds a lot like my own. Gentle hugs!
So good to see you blog again Hun. I've been wanting too but I'm afraid I wont be able to keep up with it due to flare-ups. So glad, like you, my DH is here and understands what days are like lately. Looking forward to your posts. Take it easy my friend. {{Gentle Hugz}} - Fran (FranAspieMom on Twitter)
I was IM'g with a friend the other day, and for the life of me I could not remember the correct spelling for Quiche.
He'd asked if I'd ever had egg pie. I wrote back, "you mean..." My mind was gone!
"OH! I can't even remember the word." I wrote.
Then it came to me and I asked, "Keesh?"
He ended up in a laughing coma. "STOP LAUGHING" I laughed! (~:
You have been blessed with someone who lovingly understands. No. you are not alone!
Blessings, Laura
Thank you guys so much for sharing too. You guys inspire me so much.
Maybe time is lost, but you live life so much more intense.
People take so many things for granted, which you don't.
How great to have such a hunny.
What a lovely post; hits the right note on the bittersweet, complicated experience of living with this illness and other people.
Tangelobaby,
This is a really great post. Our illnesses do impact our loved ones, to be sure. My husband and I have been married for 11 years and together for 13.
I was sick when we met but I am far, far sicker now. When they said, "in sickness and in health" at the wedding, I don't think either one of of imagined how things would turn out.
Like you, I'm thankful. I'm thankful for the time I've had to analyze and reflect on things.
Thankful that my daughter is always safe when I am incapacitated by my illnesses.
Thankful that I was fortunate enough to conceive her at all, despite my endometriosis.
Thankful for my husband's patience and understanding amidst some terrible circumstances. Great post!
Jeanne
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